Lessons from an inspirational mother and her angel baby

Today my thoughts are with a lovely lady and wonderful mum, who lost her beautiful, brave little girl yesterday to the heart muscle disease, Cardiomyopathy.

This is a friend I once worked with. We didn't socialise outwith work. I don't know why, as I always greatly admired her and enjoyed our conversations together...just one of those things, juggling work and life. However, I hold the cares and concerns of any friend... I celebrated with her as she experienced the joy of a bfp, was concerned for her as she faced as she discovered the baby had a chromosomal abnormality, celebrated again at the wonderful of the arrival of her beautiful little girl and was there with her wishing for that miracle when her daughter was diagnosed with this awful condition, of which it appeared there was no cure. My friend gave up work to dedicate time to looking after her little Rose. Their roller coster continued. She was given some hope by Great Ormond Street Hospital, but sadly the miracle wasn't to be. Yesterday she posted to say that her little angel had lost her fight for life and passed away peacefully. I cried buckets when I heard...I can't imagine what she must be going through and wish there was more I could do for her and her family.

Throughout her journey, this inspirational mother maintained an amazing level of composure and dignity, dedicating time to ensure that her baby had so many wonderful, happy times hear on earth. Whenever I met her little girl, her smile lit up the room. She was such a brave wee thing.

Hard to think of my own selfish needs at this point. I just hope I can be half the mum that my friend is and that, if required, I have even an ounce of the bravery that both of them demonstrated through this tragic journey.

My thoughts are very much with them. Rest in peace little Rose. xxx

If you would like to help families like my friend's who are suffering from the affects of this awful disease, please donate to the Cardiomyopathy Association.